Evanston Mother Trained to Push Daughter in Chicago Marathon
Megan Lassman is preparing to race with her 21-year-old daughter, Penelope, who has PHACES syndrome.
Updated on Oct. 1, 2026 in Special Needs
Evanston resident Megan Lassman has committed to pushing her 21-year-old daughter, Penelope, through the Chicago Marathon course. Penelope lives with PHACES, a congenital disorder that impacts the heart, brain, blood vessels, eyes, and sternum.
Why it matters
This effort aims to increase public visibility for families providing lifelong care for children with complex disabilities. The initiative highlights the active lives led by caretakers and their loved ones in the Chicago area.
The effort is inspired by a known father-son duo who have completed 1,000 endurance events together. Penelope, who is 21, is currently managing a diagnosis of PHACES syndrome.
The players
Megan Lassman
An Evanston resident and dedicated parent who is training for the marathon to advocate for caretakers.
Penelope Lassman
A 21-year-old with PHACES syndrome who will be participating in the marathon with her mother.
The details
Megan Lassman decided to pursue the marathon after viewing a billboard featuring a father pushing his son in various endurance races. By navigating the course with Penelope in a specialized chair, she intends to demonstrate the capabilities and presence of children with complex medical needs in sports. The team is currently in the preparation phase for the long-distance event.
Timeline
The Chicago Marathon is scheduled for October 2026.
The Home Front
This effort follows the pattern set by the Team Hoyt endurance racing model, which has long used long-distance running to increase social visibility for people with disabilities. It reflects a growing trend of families seeking greater inclusion for children with complex needs in local athletic events.
Families managing complex medical conditions like PHACES syndrome should identify local disability sports organizations to see if similar accessible programs are available in their neighborhoods. Keep a list of local marathon and charity event dates on your calendar if you are looking to support local inclusion efforts.
The takeaway
Advocacy in the disability community often starts with increasing visibility in public spaces like local marathons. Consider researching existing inclusive running groups in Illinois if you want to support or participate in events alongside children with specialized physical needs.
Further reading
For more information on finding inclusive programs for your family, visit the Special Needs section.
Source note: This article includes information reported by WBEZ Chicago.
